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Ethics News Rabbis Reform Judaism

Meaning in a Half-Opened Eye: Reaching the Unresponsive

When I interviewed for hospice chaplain jobs, a question I got just about every time was, “What do you do when you visit an unresponsive patient?” By that my prospective boss meant patients who would not respond to anything I did, like touch their hands, talk or sing. Usually they could not talk, or if they did, it was to themselves or to the world at large. During such visits I could feel invisible. If that is so, you might wonder why an interviewer would ask such a question. But rather than being a gratuitous curve ball, it strikes down deep at the essence of a chaplain’s role and to what it means to exist as a person.

While some patients truly could not respond because they were in a coma or were asleep, I often found many so-called unresponsive patients did respond if I loosened the definition of communication, or spent a long enough time to give the patient enough chance to respond. I remember one time when I introduced myself to a lanky man as I sat down in a metal chair by his bed. He did not reply, and after several seconds, I figured he had not heard me or did not understand me, so I drifted off into my own thoughts and guessed this would be a very short visit.  Luckily I lingered in my own reverie. I say luckily because after a full 30 seconds at least, he had processed what I had said, and gave an answer that a normal person would give after just a second or two max. I said something else, waited another 30 seconds as if that were the normal way to talk, and again he gave an appropriate answer. I thought to myself, “I bet most visitors casually stopping by would give up before they found out he could converse.  I wonder how long he went without having a chance to talk.”

The key task of a chaplain is to find a way to reach people. This means slowing down enough to see details that the average visitor would miss. Like an eye half opening or a finger moving in response to my voice. Like more rapid or more relaxed breathing when I hold the patient’s hand, or their turning their head towards or away from me when I sing, indicating their yay or nay to hearing it. (Believe me, there were plenty of “nays” to the music option.) It is not I who is invisible with these patients. It is the patients who are invisible to those who too automatically designate them as “unresponsive.” The patients’ essence as persons, I believe, is their ability to reach back in return, to connect with others.

Interviews are not the ideal environment for nuances, so my answer to what I did with unresponsive patients ran along the true but more superficial lines of, “Well if I knew they were religious, I would say a prayer. Otherwise I would touch their hands, sing a calming song, or say something friendly and soothing. Sometimes I would just sit by their side, in case they could sense the presence of another human being who cared enough to notice them.” Perhaps my interviewers liked this answer (at least the ones who hired me did) because they thought that kind of patient gave nothing for the chaplain to do. On the contrary, finding the key that will breach what separates them from me takes the observational skills of a Holmes and the deliberateness of an artwork restorer.

A board certified member of the NAJC (Neshama: Association of Jewish Chaplains) Rabbi Karen B. Kaplan served as a hospice chaplain for 7 years, including Princeton Hospice in New Jersey. Now a writer and teacher, her book Encountering the Edge: What People Told Me Before They Died (Pen-L Publishing, 2014) is available on Amazon and can be useful for caring committees. This post was taken from her blog, offbeatcompassion.com, a useful resource as well.

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Prayer Rabbis

How to Live Without Regret

A Russian short story portrays an aristocrat who has only a few days to live. When he replays the tape of his life in his mind he realizes he has wasted most of his life in the pursuit of wealth and power devoid of real meaning. He is desperate to rewind the tape but it is too late.

So, think of the time you have until the tape runs out and contemplate how you spend your precious time. The Rabbis said: “Change for the good one day before you die”, and since we never know when that is we must treat every new day as an opportunity to measure the goodness of our deeds.

This reminds us to be careful of how we spend our time and to value life and enjoy it, because once it’s gone it can never be retrieved.

A nurse named Bronnie Ware devoted herself to working in Hospice care in Australia. She wrote a book about what she witnessed first hand: “The Top Five Regrets of the Dying”. When she questioned those entrusted to her as to whether they had any regrets and if they would have changed anything, these are the themes that emerged.

1. I WISH I’D HAD THE COURAGE TO LIVE A LIFE TRUE TO MYSELF, NOT THE LIFE OTHERS EXPPECTED OF ME.
“This was the most common regret of all. When people realize that their life is almost over and look back clearly on it, it is easy to see how many dreams have gone unfulfilled. Most people have not honoured even a half of their dreams and had to die knowing that it was due to choices they had made, or not made. Health brings a freedom very few realize, until they no longer have it.”

2. I WISHED I HADN’T WORKED SO HARD.
“This came from every male patient that I nursed. They missed their children’s youth and their partner’s companionship. Women also spoke of this regret, but as most were from an older generation, many of the female patients had not been  breadwinners. All of the men I nursed deeply regretted spending so much of their lives on the treadmill of a work existence.”

3. I WISH I HAD THE COURAGE TO EXPRESS MY FEELINGS.
“Many people supressed their feelings in order to keep peace with others. As a result, they settled for a mediocore existence and never became who they were truly capable of becoming. Many developed illnesses relating to the bitterness and resentment they carried as a result.”

4. I WISH I HAD STAYED IN TOUCH WITH MY FRIENDS.
“Often they would not truly realize the full benefits of old friends until their dying weeks and it was not always possible to track them down. Many had become so caught up in their own lives that they let golden friendships slip by over the years. There were many deep regrets about not giving friendships the time and effort they deserved. Everyone misses their friends when they are dying.”

5. I WISH I HAD LET MYSELF BE HAPPIER.
“This is a surprisingly common one. Many did not realize until the end that happiness is a choice. They had stayed stuck in old patterns and habbits. The so called ‘comfort’ of familiarity overflowed into their emotions, as well as their physical lives. Fear of change had them pretending to others, and to their selves, that they were content, when deep within, they longed to laugh properly and have stillness in their life again.”

Yes, death can instruct us how to live. We can follow the examples of others to live more meaningful and fulfilling lives. We can summon the strength and courage we have within to enrich our lives.

Whatever time you have remaining may you be true to yourselves and make every day a blessing.

This blog originally appeared on runningrabbi.wordpress.com.